Other Support Organisations

Cancer:

Beating Bowel Cancer Awareness, education and support

Bowel Cancer UK  Advisory service

Cancer Research UK  Easy to understand patient information from Cancer Research UK

Macmillan Cancer Support  Information and support for people affected by cancer

Penny Brohn Helping people to live well with the impact of cancer

 

Crohn's Disease and Ulcerative Colitis (Inflammatory Bowel Disease):

Crohn's Zone  An interactive forum based online community

Crohn's in Childhood Research Association (CICRA)  Support for sufferers and their families

Crohns and Colitis UK Support for sufferers and their families

 

Diverticular Disease: 

Bladder and Bowel Foundation  Dedicated section for people suffering from diverticular disease

Core  Leaflet available on diverticular disease

 

Hernia: 

The British Hernia Centre Information on what hernias are and the different ways they can be repaired

 

Hirschsprung's Disease: 

Core Leaflets available on Hirschsprung's disease

Hirschsprung's and Motility Disorders Support Network (HMDSN)

 

Incontinence: 

Bladder and Bowel Foundation  Information and support for people with bladder and bowel control problems

Mitrofanoff support
Offers reassurance to anyone who may be about to have, or already has, a Mitrofanoff, and the people closest to them
 

Irritable Bowel Syndrome:

IBS Network formerly known as The Gut Trust

 

Patient Complaints and Feedback:

Healthwatch England - England's health and social care watchdog

PALS - Patient Advice and Liason Services

 

Other Support Organisations: 

Benefit Enquiry Line  Information on disability benefits

Citizens Advice Bureau

Mind Provide advice and support to empower anyone experiencing a mental health problem. Tel: 0300 123 3393 (9am-6pm Monday-Saturday)

Love Your Gut Ask the doctors about your digestive health queries.

NHS Direct

Patient UK  Provides comprehensive health information as provided by GPs and nurses to patients during consultations.

The British Pain Society Involved in all aspects of pain and its management

The Sexual Advice Association  A professionally staffed confidential helpline

The National Counselling Society 

Samaritans Available to talk anytime

Pseudomyxoma Survivor A charity supporting those with pseudomyxoma peritonei (PMP) 

Carers UK A charity for carers

Spinal Injury Association Our Support is given by spinal cord injured people, all of whom can offer their lived experiences of spinal cord injury.

Medical Accessories Support Trust for all those living at home with a medical accessory of any sort, attached to the body.

Asbestos.com The Mesothelioma Center is an advocacy group that promotes awareness on mesothelioma and asbestos exposure.

 

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