From the beginning our mission has been to listen, to inform and to be your voice.
The primary role of the Colostomy Association is to represent the interests of people with a colostomy. We are experts in living with a colostomy and that experience is available to all colostomates, via personal contact with our volunteers.
We are here to provide support, reassurance and practical information to anyone who has or is about to have a colostomy. We strive to raise awareness of what it’s like to have a stoma and what it means to live with a colostomy and by doing this, we hope to address the general lack of public knowledge.
Our ultimate goal is to champion issues that affect colostomates, their families and their carers.
How do we carry out our mission?
The organisational structure of the Colostomy Association is made up of seven Trustees, a General Manager and 6 other staff. We also have a number of highly valued volunteers who give us help and support.
Our head office is based in Reading, Berkshire and our office hours are from 9am-5pm Mondays to Fridays. The Helpline is available 24/7 and we aim to have a colostomate online able to listen and discuss your concerns.
Covering the country are over 100 trained and experienced contact volunteers who are colostomates. Our contact volunteers are dedicated individuals who bring a human touch in what can sometimes be a delicate and emotional time. Our contact volunteers are often asked to talk patients before their colostomy surgery, and afterwards in hospital, usually at the request of the stoma nurse. Home visits by our contact volunteers can also be arranged at your request.
We have a range of advisory literature, written by colostomates and nursing professionals, readily available on request. Plus our quarterly magazine "Tidings".
We attend organised stoma care nurses' "open days", where you can come and learn more about your colostomy in a friendly atmosphere and discuss any problems you may have or just enjoy the company. We give these events our full support.
The Colostomy Association also attends manufacturers' and suppliers', open days and exhibitions, where you can see what stoma bags, accessories and services are available. It's a real opportunity to meet and share experiences with other colostomates. Be sure to visit our stand - we would love to meet you.
See what the Colostomy Association has achieved over the past few years by reading our annual reviews below.
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